We have a confession to make. For the last 72 hours we've been singing kids songs at the top of our lungs. No, we're not talking about your traditional ABC's, we're talking cool indie rock for kids that you can actually listen to and enjoy (novel idea), right along side of your little ones. It's the work of Ryan Marshall and all the proceeds go toward a very important cause. Want to listen to a few tracks?
When Ryan Marshall married his lovely wife Cole, he took on the roll of not only husband, but step-father and best friend as well. Since their union, their son LB or rather Littlest Buddy, has been diagnosed with Smith Magenis Syndrome
. Never heard of it? Neither had they, in fact, neither have most people. It's a rare disease that effects all different aspects of a child's life and is discovered almost by a process of deduction rather than the symptoms themselves.
The lack of information available overwhelmed the Marshall family and they decided to do all they could to help the foundations doing research and developmental testing so this world could be explored. The small community of parents with children who suffer from the issues caused by Smith Magenis Syndrome have banded together online to discuss the issues that their children suffer from, which can range from having low muscle tone, to a decreased sensitivity to pain, delays in speech and sleep disturbances. All the parents put on a brave face and do their best to find comfort when most doctors can't provide any.
Doing what he could, Ryan has put together a charity album to help support this cause and 100% of the proceeds go to a grant fund established with PRISMS. The money will be made available to grad students who wish to make SMS their field of choice, the benefit of this is more hard research being done, which leads to more case studies, which leads to more answers for parents and researchers. You can read a little about things over at Pacing The Panic Room.
The album is packed with music from different artists all giving freely of their time and talent in donation to this cause. You can find out more about the album over at Do Fun Stuff or head on over to iTunes to download a copy for yourself. We promise it will be the best thing spinning in your cd player since, well... ever. Give it a listen below (isn't technology cool?) and tell us what your favorite track is!
Image: Do Fun Stuff, Ryan Marshall